Useful Websites



This project looks at social determinants of health as part of the recruitment and engagement strategy of individuals.

Find out more here


GENIE is a website to connect people with long-term conditions to local health and wellbeing activities.

Find out more here

The Health Literacy Tool Shed:

Find the right health literacy measurement tool for your research in the Health Literacy Tool Shed: A database of health literacy measures.

Find out more here

The Pain Tool Kit:

Is pain self management your first choice, or last resort?
The Pain Toolkit helps people all over the world self manage persistent pain.

Find out more here

The Patient’s University:

We offer lectures by experts and opportunity for talks with professionals. Learning stations with helpful information on health maintenance, diagnostics and therapy for diseases, patient rights and support options.

Find out more here

Self Care and Self Management


  • Positive Beahvioural Support – Skills for Health: Read Here
  • Shared Decision Aids – FutureLearn: Read Here
  • Personalisation; Introduction – SCIE: Read Here
  • Supporting Self Care – E-LfH; AMRC; RCP: Read Here
  • Personalised care planning – Skills for Health: Read Here
  • Peer Supported Self Management – The Lancet: Read Here
  • The Relationship Between Knowledge of Recent HbA1c Values and Diabetes Care Understanding and Self-Management: Read Here
  • Optimizing Patient and Family Involvement in Geriatric Home Care: Read Here
  • Use of the Patient Assessment of Chronic Illness Care (PACIC) with Diabetic Patients: Read Here
  • Supporting Self Management in patients with chronic diseases: Read Here
  • Chronic Care management in a patient medical home: Read Here
  • Barlow, J., Wright, C., Sheasby, J., Turner, A., & Hainsworth, J. (2002). Self-management approaches for people with chronic conditions: a review. Patient Educ Couns, 48(2), 177-187. Read Here
  • Bodenheimer, T., K. Lorig, et al. (2002). “Patient self-management of chronic disease in primary care.” Jama 288(19): 2469-75. Read Here
  • Bodenheimer, T., K. MacGregor, et al. (2005). Helping Patients Manage Their Chronic Conditions, CaliforniaHealth Care Foundation: 1-25.
    Read Here
  • Center for the Advancement of Health (CFAH). (2002). Essential Elements of Self-Management Interventions (No. 8035): Center for the Advancement of Health; Funded by the Robert Wood Johnson Foundation.
  • Chodosh, J., Morton, S. C., Mojica, W., Maglione, M., Suttorp, M. J., Hilton, L., et al. (2005). Meta-analysis: chronic disease self-management programs for older adults. Ann Intern Med, 143(6), 427-438.  Read Here
  • Fisher, E. B., C. A. Brownson, et al. (2005). “Ecological Approaches to Self-Management: The Case of Diabetes.” American Journal of Public Health 95: 1523-1535.  Read Here
  • Funnell, M. M., & Anderson, R. M. (2002). Working toward the next generation of diabetes self-management education. Am J Prev Med, 22(4 Suppl), 3-5.  Read Here
  • Funnell, M. M., Brown, T. L., Childs, B. P., Haas, L. B., Hosey, G. M., Jensen, B., et al. (2007). National Standards for Diabetes Self-Management Education. Diabetes Care 10.2337/dc07-9923, 30(6), 1630-1637.  Read Here
  • Glasgow, R. E., Funnell, M. M., Bonomi, A. E., Davis, C., Beckham, V., & Wagner, E. H. (2002). Self- management aspects of the improving chronic illness care breakthrough series: implementation with diabetes and heart failure teams. Ann Behav Med, 24(2), 80-87.
  • Glasgow, R. E., C. L. Davis, et al. (2003). “Implementing practical interventions to support chronic illness self- management.” Jt Comm J Qual Saf 29(11): 563-74.
  • Goldstein, M. G. (2002). Promoting Self-Management in Primary Care Settings: Limitations and Opportunities: A Commentary. In R. Williams & W. Herman & A.-L. Kinmonth & N. J. Wareham (Eds.), The Evidence Base for Diabetes Care (pp. 701-710). West Sussex, England: John Wiley and Sons, LTD.  Read Here
  • Lorig, K. R., & Holman, H. R. (2003). Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med, 26(1), 1-7. Read Here
  • Lorig, K. R., Mazonson, P. D., & Holman, H. R. (1993). Evidence suggesting that health education for self- management in patients with chronic arthritis has sustained health benefits while reducing health care costs. Arthritis Rheum, 36(4), 439-446  Read Here
  • L., Engelgau, M. M., & Narayan, K. M. V. (2001). Effectiveness of Self-Management Training in Type2 Diabetes: A systematic review of randomized controlled trials. Diabetes Care, 24(3), 561-587.  Read Here
  • Osborne, R. H., Wilson, T., Lorig, K. R., & McColl, G. J. (2007). Does self-management lead to sustainable health benefits in people with arthritis? A 2-year transition study of 452 Australians. J Rheumatol, 34(5), 1112- 1117.  Read Here

The Doctor-Patient consultation


  • Two words to improve physician -patient communication: What else? Read Here
  • Empathy: Read Here
  • Basic Principles and Expectations: Read Here
  • Relationships between physician practice style, patient satisfaction and attributes of primary care: Read Here
  • DiMatteo, M. R., Reiter, R. C., & Gambone, J. C. (1994). Enhancing medication adherence through communication and informed collaborative choice. Health Communication, 6(4), 253-265.
  • Funnell, M. M., Anderson, R. M., Arnold, M. S., Barr, P. A., Donnelly, M., Johnson, P. D., Taylor-Moon, D., & White, N. H. (1991). Empowerment: an idea whose time has come in diabetes education. Diabetes Educ, 17(1), 37-41.  Read Here
  • Heisler, M., Bouknight, R. R., Hayward, R. A., Smith, D. M., & Kerr, E. A. (2002). The relative importance of physician communication, participatory decision making, and patient understanding in diabetes self- management. J Gen Intern Med, 17(4), 243-252.  Read Here
  • Heisler, M., Vijan, S., Anderson, R. M., Ubel, P. A., Bernstein, S. J., & Hofer, T. P. (2003). When do patients and their physicians agree on diabetes treatment goals and strategies, and what difference does it make? J Gen Intern Med, 18(11), 893-902.  Read Here
  • Kaplan, S., Greenfield, S., & Ware, J. (1989). Assessing the effects of physician-patient interactions on the outcomes of chronic disease. Medical Care, 27(Suppl 3), S110-S127.  Read Here
  • Safran, D. G., Taira, D. A., Rogers, W. H., Kosinski, M., Ware, J. E., & Tarlov, A. R. (1998). Linking primary care performance to outcomes of care. J Fam Pract, 47(3), 213-220.  Read Here
  • Squier, R. W. (1990). A model of empathic understanding and adherence to treatment regimens in practitioner- patient relationships. Soc Sci Med, 30(3), 325-339.  Read Here
  • Stewart, M., Brown, J. B., Boon, H., Galajda, J., Meredith, L., & Sangster, M. A. (1999). Evidence on Patient- Doctor Communication. Cancer Prevention & Control, 3(1), 25-30.  Read Here
  • Wagner, E. H., Glasgow, R. E., Davis, C., Bonomi, A. E., Provost, L., McCulloch, D., et al. (2001). Quality improvement in chronic illness care: a collaborative approach. Jt Comm J Qual Improv, 27(2), 63-80. Read Here
  • Whitlock, E. P., Orleans, C. T., Pender, N., & Allan, J. (2002). Evaluating primary care behavioural counselling interventions: an evidence-based approach. Am J Prev Med, 22(4), 267-284.  Read Here


Patient Activation and Behaviour Change


  • Behavioural interventions for Adolescents with type 1 diabetes: Read Here
  • The Diabetes Empowerment Scale: Read Here
  • Summary of the evidence on performance of the patient: Read Here
  • What the evidence shows about patient activation, better health outcomes and care experiences: Read Here
  • Promoting patient engagement and participation for effective healthcare reform: Read Here
  • Determinants of activation for self-management in patients with COPD: Read Here
  • Participatory Decision Making, Patient Activation, Medication Adherence, and Intermediate Clinical Outcomes in Type 2 Diabetes: A STARNet Study: Read Here
  • Patient Centered Care: A Tool to Promote Empowerment and Medication Adherence Among American Indian Patients with Type 2 Diabetes: Read Here
  • Anderson, R., Funnell, M., Butler, P., Arnold, M., Fitzgerald, J., & Feste, C. (1995). Patient empowerment: Results of a randomized controlled trial. Diabetes Care, 18(7), 943-949.  Read Here
  • Clark, N. M., & Becker, M. H. (1998). Theoretical Models and Strategies for Improving Adherence and Disease Management. In S. Shumaker, E. B. Schron, J. K. Ockene & W. L. McBee (Eds.), The Handbook of Health Behavior Change: Second Edition (Second ed., pp. 5-32). New York: Springer Publishing Company.
  • Glasgow, R. E., Fisher, E. B., Anderson, B. J., LaGreca, A., Marrero, D., Johnson, S. B., et al. (1999). Behavioral science in diabetes. Contributions and opportunities. Diabetes Care, 22(5), 832-843.  Read Here
  • Glasgow, R. E., M. G. Goldstein, et al. (2004). “Translating What We Have Learned Into Practice: Principles and Hypotheses for Interventions Addressing Multiple Behaviors in Primary Care.” American Journal of Preventive Medicine 27((2suppl)): 88-101.
  • Goldstein, M. G., E. P. Whitlock, et al. (2004). “Multiple behavioral risk factor interventions in primary care; Summary of research evidence.” Am J Prev Med 27(2 Suppl): 61-79.  Read Here
  • Handley, M., MacGregor, K., Schillinger, D., Sharifi, C., Wong, S., & Bodenheimer, T. (2006). Using action plans to help primary care patients adopt healthy behaviors: a descriptive study. J Am Board Fam Med, 19(3), 224-231.  Read Here
  • Haynes, R. B., Taylor, D. W., & Sackett, D. L. (1979). Compliance in Health Care. Baltimore: Johns Hopkins University Press.
  • Hibbard, J. H., Mahoney, E. R., Stock, R., & Tusler, M. (2007). Do increases in patient activation result in improved self-management behaviours? Health Serv Res, 42(4), 1443-1463.  Read Here
  • Hibbard, J. H., Mahoney, E. R., Stockard, J., & Tusler, M. (2005). Development and testing of a short form of the patient activation measure. Health Serv Res, 40(6 Pt 1), 1918-1930.  Read Here
  • Rollnick, S., Mason, P., & Butler, C. (1999). Health Behaviour Change: A Guide for Practitioners. Edinburgh: Churchill Livingstone. Read Here


Psychotherapy and Counselling


  • Bohart, A., & Greenberg, L. W. (1997). Empathy: Where are we and where do we go from here? In A. Bohart & L. W. Greenberg (Eds.), Empathy Reconsidered New Directions in Psychotherapy. Washington, D.C.: American Psychological Association.  Read Here
  • Orlinsky, D., Grawe, K., & Parks, B. (1994) Process and outcome in psychotherapy – noc einmal. In A. Bergin & S Garfield (eds), Handbook of Psychotherapy and Behaviour Change (4th edition, pp 270 -378) New York:Wiley Read Here
  • Rogers, C. (1980) A Way of Being Boston:Houghton Mifflin  Read Here
  • Rollnick, S., Mason P., Butler, C. (1999) Health Behaviour Change: A Guide for Practitioners, Edingburg  Read Here
  • Whitlock, E.P., Orleans, C.T., Pender, N., & Allen,J. (2002) Evaluating primary care behavioural counselling interventions in an evidence based approach. Am J Prv Med, 22 (4), 267 – 284.  Read Here


General References


  • What is the evidence on existing policies and linked activities and their effectiveness for improving health literacy at national, regional and organizational levels in the WHO European Region(2018) By: Gillian Rowlands, Sian Russell,  Amy O’Donnell, Eileen Kaner, Anita Trezona, Jany Rademakers, Don Nutbeam. Health Evidence Network synthesis report 57 2018, x + 38 pages. ISBN 978 92 890 5319 8. CHF 20. Order no. 13400195: Read Here
  • Considerations for diabetes translational research in real world settings: Read Here
  • Developing and using interactive Health CD Roms as a compliment to primary care: Read Here
  • Concordance, Compliance and Adherence in Health Care: Closing Gaps and Improving Outcomes: Read Here
  • Battersby, M., Harvey, P., Mills, P. D., Kalucy, E., Pols, R. G., Frith, P. A., et al. (2007). SA HealthPlus: a controlled trial of a statewide application of a generic model of chronic illness care. Milbank Q, 85(1), 37-67. Read Here
  • Becker, M. H. (1985). Patient adherence to prescribed therapies. Med Care, 23(5), 539-555.
  • Corabian, P., & Harstall, C. (2001). Patient diabetes education in the management of adult type 2 diabetes. Edmonton, AB, Canada: Alberta Heritage Foundation for Medical Research.
  • Corbin, J., & Strauss, A. (1998). Unending Work and Care: Managing Chronic Illness at Home. San Francisco: Jossey-Bass Publishers. Read Here
  • DiMatteo, M., & DiNicola, D. (1982). Achieving Patient Compliance. Elmsford, NY: Pergamon.
  • DiMatteo, M. R., Hays, R. D., Gritz, E. R., Bastani, R., Crane, L., Elashoff, R., et al. (1993). Patient adherence to cancer control regimens: Scale development and initial validation. Psychological Assessment, 5, 102-112.  Read Here
  • Glasgow, R. E., Fisher, L., Skaff, M., Mullan, J., & Toobert, D. J. (2007). Problem solving and diabetes self- management: investigation in a large, multiracial sample. Diabetes Care, 30(1), 33-37. Read Here
  • Glasgow, R. E., Hiss, R. G., Anderson, R. M., Friedman, N. M., Hayward, R. A., Marrero, D. G., et al. (2001). Report of the health care delivery work group: behavioral research related to the establishment of a chronic disease model for diabetes care. Diabetes Care, 24(1), 124-130. Read Here
  • Kinmonth, A. L., Woodcock, A., Griffin, S., Spiegal, N., & Campbell, M. J. (1998). Randomised controlled trial of patient centred care of diabetes in general practice: impact on current wellbeing and future disease risk. The Diabetes Care From Diagnosis Research Team. Bmj, 317(7167), 1202-1208. Read Here
  • Maskey, Neil : Words Matter. BMJ;10/03/15 Read Here
  • Marks, R., Allegrante, J. P., & Lorig, K. (2005). A review and synthesis of research evidence for self-efficacy- enhancing interventions for reducing chronic disability: implications for health education practice (part II). Health Promot Pract, 6(2), 148-156.
  • Meichenbaum, D., & Turk, D. (1987). Facilitating treatment adherence: A practitioner’s guidebook. New York: Plenum Press. Read Here
  • Ockene, I. S., Hebert, J. R., Ockene, J. K., Merriam, P. A., Hurley, T. G., & Saperia, G. M. (1996). Effect of training and a structured office practice on physician-delivered nutrition counseling: the Worcester-Area Trial for Counseling in Hyperlipidemia (WATCH). Am J Prev Med, 12(4), 252-258. Read Here
  • Ockene, I. S., Hebert, J. R., Ockene, J. K., Saperia, G. M., Stanek, E., Nicolosi, R., et al. (1999). Effect of physician-delivered nutrition counseling training and an office-support program on saturated fat intake, weight, and serum lipid measurements in a hyperlipidemic population: Worcester Area Trial for Counseling in Hyperlipidemia (WATCH). Arch Intern Med, 159(7), 725-731. Read Here
  • Sherbourne, C. D., Hays, R. D., Ordway, L., DiMatteo, M. R., & Kravitz, R. L. (1992). Antecedents of adherence to medical recommendations: results from the Medical Outcomes Study. J Behav Med, 15(5), 447-468. Read Here
  • Wagner, E. H. (1998). Chronic disease management: what will it take to improve care for chronic illness? Eff Clin Pract, 1(1), 2-4. Read Here
  • Williams, G. C., Rodin, G. C., Ryan, R. M., Grolnick, W. S., & Deci, E. L. (1998). Autonomous regulation and long-term medication adherence in adult outpatients. Health Psychol, 17(3), 269-276. Read Here